Tag Archives: physical illness

You never know what’s around the corner

We never know what’s around the corner

TW – Trigger Warning – this blog contains honest content about weight loss and symptoms of eating disorders. Please consider taking care of yourself and clicking away if this may be triggering for you.

For 2 weeks at the beginning of September I lived with an undiagnosed fractured jaw. Not just a little chip, my mandible is completely broken, all the way through! I went to hospital but they were certain it wasn’t broken (that’s a story for another blog). During the 2 weeks before diagnosis I was trying to manage a soft tissue injury which involves gentle exercises and trying to chew despite the terrible agony! I was even playing my saxophone!

Anyway, long story short, fracture diagnosed, surgery untaken, restricted diet underway and I’m losing weight like it’s going out of fashion!

I’m trying really hard to be honest with people about how things are going. Things haven’t been straight forward with the recovery, I’ve needed extra appointments and additional management.

This is a mental health blog where I talk honestly about mental illness and recovery. Being on the right side of recovery it’s (relatively) easy to talk about the bad stuff because I can see that things turn out alright in the end. But at the moment, while things are physically really hard, my mental health is under strain.

I always think twice about writing a blog like this because I don’t want anyone to worry about me (as there genuinely is no need).

My mood has taken a hit, for a number of reason: missed diagnosis, pain, fatigue, not being able to do the things I usually do. I think all these things would take its toll on anyone’s mood.

I also have a history of anorexia and despite full recovery, something I struggle to talk about is my residual poor body image. I was told, as I was supported to weight restore, that my mind would catch up with my body; they tell you, you must weight restore first, then you will gradually start to feel ok about a “normal/average” body size. But I never have, I’ve never felt ok in a “health” body. It’s always felt too big, too fat, like I’m taking up too much space. So as my weight has dropped on a liquid diet, I’m feeling a bit better about my body – I know this can be a slippery slope but it’s a familiar space and when you’re feeling low, you grasp for anything comforting. Old thought habits fall into place easily.

I’ve had people say “you’re looking good”; this really doesn’t help. Those of us who’ve been down the ED black hole know these comments fuel the fire.

The most scary thoughts/feelings are when I’m walking around a supermarket or in a cafe and I see lots of foods I want but can’t have. People often think anorexia is about hating food, forgetting about it and not being bothered by it – far from this, anorexia is an obsession with food, thinking about it all the time, the body wants it but the mind has to find ways to avoid due to shear fear and anxiety. When I had anorexia whenever I walked around a supermarket I would see lots of foods I wanted but I couldn’t have – right now this is all too familiar.

Ways I’m looking after myself:

  • Learning to rest and enjoy it – a familiar pattern would be to exercise away my limited calorie intake but I know this would be unhelpful. My body needs to heal, I need to help it as much as possible. It’s easy to feel guilty about resting but why should I feel guilty about looking after myself?
  • Getting fresh air everyday – it’s easy when feeling down to shut yourself away, especially with so little energy but fresh air is good for the soul!
  • Continuing with routine – although I can’t do a lot of things I usually do I’m still going to work and church. If I’m looking for familiarity, I can’t go wrong with being around familiar people.
  • Keeping meal times – not being able to eat (only drink) it would be easy to fall out of meal time routine but I’ve remained with the pattern of breakfast, lunch and dinner, trying to vary the drinks I have!
  • Being honest with people – how easy is it to say “alright” or “fine” when someone asks how you are?! I cut down what I say depending on how much time someone has but right now things aren’t ok so I say it how it is. I never want people to lie to me when I ask them how they are, so I treat people how I want to be treated.
  • Being conscious of calories and nutrients – Feeling low and lacking appetite, it would be easy not to bother with food but I know it’s important. It’s hard work getting in enough calories when they’ve got to be accompanied by so much water but there’s good information online for post surgery dietary intake. Plus I have a good dietitian friend who’s helped me out!

I wanted to write this blog, partly to raise awareness about the chronic nature of mental illness. Even when recovered, it can lurk in the background, we remain susceptible to relapse. I also wanted to let anyone who’s struggling with relapse know they’re not alone, it doesn’t have to be an inevitable black hole. Right now, I’m working hard to stay well, by looking after myself I know things can get better.

Why am I running a marathon?

Some of you will know I’ve spent the last little while training for a marathon and it’s coming up fast so I thought I’d share a few things I’ve been reflecting on! Firstly, why the heck am I doing it?!

Because I want to!

Group of mixed sex marathon running

Ever since I can remember being aware of what a marathon is, I have wanted to do one! I can’t quite put my finger on why, I just remember seeing it on television and I thought it was amazing to be able to run that far; it seemed as though finishing it led to a huge sense of achievement and so much positivity surrounded the whole event. Whether people run for charity, in fancy dress or for personal goals, everyone has one target, the finish line! While it’s a solitary pursuit, there’s a fantastic sense of comradery! Having done a couple of half marathons the buzz produced by the spectators is great, complete strangers come to cheer you on. Everyone wants everyone to achieve whatever goal they’ve set themselves! That goal may simply be to finish while others chase records.

It’s now or never!

Over the years my health has let me down. Chronic mental and physical illnesses have taken their toll on my body. After a failed operation on my ankle a couple of years ago, my surgeon has said the next option is to fuse my ankle joint. While it will be possible to run on a fused ankle, I know the rehab process will be long. To put off the operation as long as possible I’ve been fitted with an orthotic that keeps my ankle joint rigid; currently this keeps my pain to a minimum and allows me to run.

I have fibromyalgia, currently an incurable condition that tends to get worse rather than better. I also have degeneration and various arthritic changes in my cervical and thoracic spine, which, again, are getting worse, not better! I’m on a waiting list to have injections into my spine to help with the pain, I’m currently managing with multiple painkillers and frequent chiropractic sessions.

I’m using this window, before another ankle op is absolutely necessary, to achieve my dream. My body is crumbling (some people don’t believe me because I’m really good at covering up how much pain I’m in but it really is!), the longer I leave it, the less likelihood there is of me achieving this! If I tried waiting for optimal health, it’s never going to happen so it’s now or never!

Things I’ve learnt

  • Fuelling while I’m running – having run a couple of half marathons without eating, this came as a bit of a shock but it turns out the body can only store enough glycogen to keep you going for about 1.5 hours. I’m going to take a lot longer than that so it’s been an interesting part of training to work out what to eat, when and how! I well and truly hit the proverbial wall about 2.5 hours into my first long run… I don’t want to experience that again! (Good to experience it in training rather than the real thing though!). Fuelling correctly before running is to ensure the glycogen stores a jam-packed. I’ve been having fun cooking more varied meals!
  • It’s a good idea to smell soya milk before using it to make pre-run porridge – turns out, soya milk goes off. I had no idea and it tasted fine in my porridge… until mid 18-mile-training-run my tummy was very very unhappy, ‘nuff said… again, good job I experienced this mid-training run and not in the real thing!
  • My mind is incredibly strong – even when achy and exhausted, I’ve proved again and again, I can keep going. I may not be fast but I can keep going. That unforgettable 18 miles I mentioned above? I finished that run! Just shows what you can force your body to do when you want to/have to! I keep going when it’s tough using a few mantras in time with my footsteps: “you can do this” or “just keep go-ing” – the 4 syllables helps keep my rhythm going. My body may not be great, it’s going to hurt but it’s going to be the power of self belief that carries me over the line.
  • Rest is just as much a part of training as running is – I’m finding as I taper down my miles (a important part of any training schedule) when I do run I’m feeling stronger. In my younger years when I’ve not followed any training plan, I’ve pounded the streets day-after-day-after-day, not achieving anything but exhaustion. Unfortunately my sleep will never be the best quality (due to fibro) but resting for long enough is required for muscles to recover.
  • Podcasts are fantastic – lots of people like running to music but I find it difficult as I tend to run to the beat even if it too fast or slow for me. However, I’ve been entertained during the long hours on my own by some great podcasts. The subject matter of some of these may surprise you but I think I’ve learnt the atmosphere created by the banter matters more to me than the theme (in no particular order): You, me and the Big C: Putting the can in cancer – fantastically funny and serious but above all honest conversations around the subject of cancer, Wellfar – podcast tracking marathon training with Amy Hopkinson, Sh**ged Married Annoyed – Rosie and Chris Ramsey taking an honest look at their married and answer listen questions, Something Rhymes with Purple – a fun discussion about our bright and colourful English language with etymologist Susie Dent and Giles Brandreth, Scummy Mummies – an hilarious look at parenthood, Deliciously Ella – a down to earth conversation about mental and physical health, David Tenant Does a Podcast – revealing but relaxed conversations with the gorgeous David Tenant at the helm. One thing I would say is I’ve found running is compatible with neither laughing nor crying…!
  • There’s a lot to remember before setting out on a long run – while you’re remembering to put on suncream and sunglasses to position blister plasters, carry water and food, you’ve got to decide on a garment to carry everything, you’ve also got to do the right warm up, I have to remember to warm up my ankle before putting on my ankle brace as my ankle muscle still try to work (despite being braced) and they get tight. It took me a long time to decide on a comfortable hair-do for running – to low plait has it – not too tight but not too loose! Remembering to charge my headphones is essential too!
  • A new brace solves the blister issues – I was told each orthotic would last 9-12 months of normal use. But, I’m, erm… thwacking it through marathon training! My 6 month old brace was causing awful blisters, fortunately, my orthotist ordered a new one, no questions asked and my new one is doing a grand job!
  • It’s possible to stick to a plan and be flexible at the same time – I mapped out my training programme in front of a computer. I’m usually someone who sets a plan and sticks rigidly to it but that would have been a recipe for self destruction so as the weeks went by I found small adjustments and made it more suitable for my weekly commitments and how I felt my body was recovering from long runs etc.

Never have the following sayings been more true:

If you think you can or think you can’t, you’re right” and

If you want to you’ll find a way, if you don’t want to you’ll find an excuse”!

If you’re thinking you might want to run a marathon…keep both of these in mind!

Female running down a track between a line of trees

Training for a marathon is no small feat, it takes time and discipline. My husband has been a saint, giving me the time and space I need, he’s even been water-boy on occasion, tracking me around the beautiful Hampshire countryside providing water and sustenance. I’m being selfish, this dream is all about me, feeling good about myself and nothing else. I know there will be many people there raising money for charity or doing other honourable things but I spend the large majority of my life doing stuff for other people so this is just for me. It’s really hard to admit this because I don’t think I deserve it, but that’s exactly why I’m doing it, to prove to myself, I am worth it!

Image of my tattoo

What does my tattoo mean?

I’ve finally done it! It may surprise some people but I’ve finally been inked and I have some permanent body art I absolutely love! For me, it’s been a long time coming. I thought long and hard and whether I wanted one at all and I considered very carefully the content and placement of said tattoo.

The cat

My pencil sketch

I’ve had cats as pets all my life. I don’t just love cats, they’ve been an integral part of my mental health recovery. When in a dark place, a cat does not judge you or treat you differently, they do not worry about what to say or how to treat you; if they want food or fuss, they pester you, they lead a simple life but I love their individual characters. At times when getting on with humans has been too difficult, I’ve always found comfort in the companionship of a cat.

Milly has taught me to be more laid back. Rosa taught me to be content with the small things. Figgy teaches me everyday that being an idiot is ok!

The cat in my tattoo represents the comfort and relief I find when in the presence of a cat. But from my position of comfort I can reach for…

The butterfly

A symbol of freedom. As a butterfly emerges from its chrysalis and dries out its wings, it’s undergone and incredible transformation and now has the freedom to fly. Mental health recovery is a fragile entity, not to be taken for granted. As a butterfly has the freedom to fly, it’s also vulnerable to the slightest insult.

Butterfly is also a symbol of hope, bravery and commitment.

The semi colon

The body of the butterfly is a semi colon and represents the idea that my story is not over. It was coined by the semi colon project to be shared by people who’ve been touched by suicide. I have attempted to take my life on a number of occasions but I live and my story goes on.

I’ve joined a community of people who believe we have a collective responsibility to prevent suicide by sharing information and resources. If I can have just one more conversation about suicide prevention, it;’s worth it. Hopefully, it’ll start many conversations!

Designed by me

Lots of my sketches

After looking at numerous pages of Google images and trawling Pinterest, I knew what I wanted, I hadn’t found the exact image, the best way to explain it was to draw it myself so that’s what I did! It took a lot of drafting, I’m no artist! But I got there eventually. The final design s a combination of the cat drawn by me, refined by the tattoo artist and the butterfly designed and drawn by the artist.

I think there’s beauty in the simplicity of the lines. I didn’t want it to be any specific cat or species of butterfly – what they represent is more important.

Placed on my back

To represent my perseverance to put my mental illness behind me.

While I’m glad to have serious episodes of mental illness behind me, I can’t say that about physical illness. I continue to have serious neck and back pain caused by arthritis in my spine and fibromyalgia. I feel like, by putting something pretty on the area that’s causing me grief, I’m doing something to counteract my feelings of annoyance and frustration.

Hidden by my clothes

Because I know there are people out there who judge: People with tattoos, people with scars, people with mental illness.

I did wonder about having it visible and laughing the face of judgment but I’d rather people get to know me and then they find out I don’t fit the stereotypes they’d expect. They way I can challenge their judgments they hold. I do, also, need to consider my professional life. It’s a shame that people make judgments and assume stereotypes but in my professional life, I’m in a position of trust and I need to put my clients first and consider how they feel – I don’t want them to be distracted by my tattoos.

Visible on occasion

While my tattoo is for me, I didn’t get it for anyone else, I not averse to positive feedback! I’ve chosen a position that I can choose whether or not I have it on show. I think it’s quite pretty and while there are people who’re against tattoos in general, I think if people see mine, on the whole, people will not be offended by mine, so I going to enjoy choosing clothing based on how low the back is!

My tattoo

Represents how I live my life – in an incredibly careful and considered way! Maybe I overthink things sometimes but then I’m able to step outside the box into the unexpected too!